Mobility

A day trip to London sounds simple. Book the train. Pack a bag. Head into the city. But when you live with Autism, ADHD, Functional Neurological Disorder, chronic fatigue, and a mobility scooter with a limited battery life, a “simple” day out becomes a carefully balanced energy equation. This is what a day in London looks like when you plan it around access, sensory needs, rest breaks, and the reality that your body might change the plan at any moment. Booking Passenger Assis

If there’s one thing I’ve learned about FND, it’s this: It isn’t just about symptoms. It’s about energy. Managing my FND is basically managing my battery levels - and trying not to drain them before the day has even started. There are so many factors to my FND, and so many things that can trigger symptoms… but energy is the biggest one. Sleep (the biggest one of all) Let’s start with sleep. Sleep is when your body regenerates. If I’ve had a disturbed night, not enough sleep,

When you learn to do something for the first time, new neuro pathways are formed in your brain. For ease of explanation, imagine threads of cotton in your mind - one for walking, one for talking, one for picking up a toy, one for brushing your teeth… you get the idea. A lot of these pathways are developed when we’re children, but as the saying goes… “Every day is a school day.” We never stop learning. As we grow into adulthood, we learn about finances, relationships, how to b

Have you ever felt like you are walking through treacle or that your limbs are so heavy they are too hard to lift? Fatigue looks different to different people and it can be brought on for many different reasons. Here is how it affects me… Looking back I’ve always been “tired”. I’m definitely NOT a morning person and could lie in at the weekend until noon without a problem. I love to snooze in the afternoon, I am not great company on a car journey - the motion sends me sleepy

We often talk about the person who goes through cancer, but not enough about the one who stands beside them. My husband has always been my quiet strength - steady, loving, and strong - but in October 2024 he shared something that took my breath away. My husband put a post on social media that was very unlike him. He's such a private person but has seen the impact that my honesty has had in the social media posts I had made and wanted to be honest about his experience so that

Breast cancer will always be part of me, it changed me, my body and my outlook on life. I survived it and not everyone can say that. I'm one of the lucky ones. During my treatment I said I wanted to get a tattoo. My first tattoo to celebrate my survival. My first tattoo full stop. It took a while to decide what and where and who to do it. 2 years after I became cancer free, I celebrated it by getting my very own pink ribbon. My permanent reminder that I came through a tough b

I've not flown a lot in the last 20 years but when I have I've had special assistance because of other family members needing it or because I was using a wheelchair or mobility scooter. I'm typing this mid flight home from a week in Lanzarote as I am trying to calm my heart from beating so hard that it flies out of my mouth (literally this is how it feels).  This holiday was a week just my hubby and me. No wheelchair. No scooter. No children with additional needs. No thoughts