top of page
Making Sense Of Life, One Story At A Time
Sharing real life stories of neurodiversity, cancer, neurology and healing - to help others feel seen, heard and empowered.
Cancer


Fatigue: Part 1 - Feeling Like I Could Sleep Forever!
Have you ever felt like you are walking through treacle or that your limbs are so heavy they are too hard to lift? Fatigue looks different to different people and it can be brought on for many different reasons. Here is how it affects me… Looking back I’ve always been “tired”. I’m definitely NOT a morning person and could lie in at the weekend until noon without a problem. I love to snooze in the afternoon, I am not great company on a car journey - the motion sends me sleepy
4 min read


The Man Who Found The Lump: My Husband's Plea
We often talk about the person who goes through cancer, but not enough about the one who stands beside them. My husband has always been my quiet strength - steady, loving, and strong - but in October 2024 he shared something that took my breath away. My husband put a post on social media that was very unlike him. He's such a private person but has seen the impact that my honesty has had in the social media posts I had made and wanted to be honest about his experience so that
3 min read


Treatment Has Finished… Now What???
This month is 2 years since I rang the bell for ending treatment. It feels like many moons ago but only yesterday at the same time. From the day I found my lump to the end of treatment was 10 months. 10 months of appointments, visits to hospital, meeting different teams of doctors and nurses. Then I rang the bell, walked out of the door and that was it. It was all over. I felt like I was supposed to be happy. But something that no-one tells you about is the way you feel when
4 min read


Finding Support
About 4 weeks after my breast cancer surgery I went to Maggie’s . For those of you that haven’t heard of Maggie’s, they are a charity who have cancer centres all around the country. A calm place to go and find support for people and their families going through cancer. My local centre is opposite the breast care centre at my hospital. We walked in and were greeted by a volunteer, asked if we wanted a brew and a bit of cake and took a comfy seat. We explained our situation and
5 min read


Checking Your Boobies!
When I - or should I say my hubby - found the lump in my left breast I’d just turned 43 and it was almost 3cm in size. 43 is young, but there are plenty who are younger than I was. Regular mammograms start at 50 years old. I was really angry when I thought about it. Under 50s are on their own to recognise any changes to their breasts. They haven't got the “backup” or piece of mind of mammograms. I started to look into it. Mammograms aren't offered to under 50s as younger br
3 min read


“Go Grab Life”
Breast cancer will always be part of me, it changed me, my body and my outlook on life. I survived it and not everyone can say that. I'm one of the lucky ones. During my treatment I said I wanted to get a tattoo. My first tattoo to celebrate my survival. My first tattoo full stop. It took a while to decide what and where and who to do it. 2 years after I became cancer free, I celebrated it by getting my very own pink ribbon. My permanent reminder that I came through a tough b
2 min read


Crappy Veins? = Chest Port Being Fitted (and Removed)
My veins weren't great at the best of times but chemotherapy had shut them down. Putting in cannulas each session was becoming more and more painful as the nurses struggled to find a “decent one”. We discussed having a port fitted into my chest. It has a squishy area that the needle from the cannula goes in (about the size of a 10 pence piece). A tube would run into a good vein in my neck. The whole device would sit just under my skin and would stay in place until my final t
3 min read


Wig, Wigs and More Wigs!
I've met so many people with breast cancer since being diagnosed with it myself and not one of us has had an identical path. With all the side effects that come with chemotherapy, the most common of all was losing our hair. I found picking a wig was a bit like shopping for clothes! Do you head for a salon experience or order online and do it in the comfort of your own home? Online there are so many websites with so many styles and colours, it was difficult to know where to st
3 min read


Hair Today Gone Tomorrow: Dealing With Hair Loss
A side effect of the chemotherapy drugs I was going to be given for my Breast Cancer was that it was very likely that my hair would fall out. I was offered a cold cap . It's a bit like a swimming cap that you put on before each chemo session and wear it until the end. It helps to prevent hair loss by making the hair follicles so cold that they are less likely to be affected by the drug and your hair stays in place. As part of my autism diagnosis, I was also diagnosed with Se
5 min read


Fighting Cancer - What Does That Mean?
Being autistic has its advantages. I love statistics, facts and researching the hell out of things. I understood my diagnosis really well. I researched each segment of what each area of my diagnosis means (like what Ki67 means for example). Statistics and facts make sense to me. Where being autistic isn't helpful is with communication. I went on a mission to find out what people mean when they say I'm "fighting cancer". To me, I turned up at the appointments I was told to go
2 min read
bottom of page
