A slow-burning fatigue, tremors, pain, and weakness began to unravel the life I thought I knew. Something was wrong with my body, but no one could tell me what.
After months of confusion, I finally received a diagnosis: Functional Neurological Disorder and Non Epileptic Attack Disorder. Relief, anger, and grief all came in waves as I entered a new medical no man’s land.
In late 2023, my body gave up completely. I couldn’t walk unaided, was barely functioning, and life became a series of hospital visits, tests, and waiting. My body had finally spoken - but I still didn’t understand the language.
In January 2025, a nine-day relapse sent me back to A&E. The neurologist confirmed my diagnosis, but real support remained locked behind postcode lotteries and long waiting lists. It was time to accept that managing - not curing - was the way forward.
